Hello everyone,
Today is the first day I feel more like myself again. I have finally had my catheter taken out and even though it was painful, once it was out, I let out a great sigh of relief! It's amazing to be free from it.
I had to move beds back into the main ward. I was quite nervous about doing this because it meant getting up and walking and this morning I nearly toppled over when I was standing up. It wasn't as bad as I thought as the catheter was out and this had been stopping me from doing anything. As soon as I was up there was all this nagging about brushing my teeth by my grandma. I shall hold this against her haha!
My grandma and aunty T have been reading to me this afternoon - a new book called 'Spud' about a boy that goes to boarding school like me. It's quite fun although once again I didn't have a choice in the matter about being read to!!
Please keep visiting my blog. Spread the word. Leave comments! Thanks, Q
Saturday 21 June 2008
Friday 20 June 2008
Friday 6pm
I've had a much better afternoon than this morning. I think this is because they took down the IV morphine and now I'm just having tablets. This has helped me be more alert. Also the nausea is gone but the muscle relaxant medicine they gave me this morning to help with this was horrible - it made me feel really weird and cringey.
I had a nice surprise because Mrs. M brought Mrs. DeB with her and I wasn't expecting it. They brought me a special card - my friends from drama class had spelt out the words "Get well Q!" by laying on the grass in the shape of all the letters. Thank you Miss. B for changing your lesson for me! All of the teachers wrote on some pieces of paper saying get well soon - thank you Mr. H for those Maths questions! Mr. G, my Year 6 teacher, brought back an embarrassing memory of when he came to visit me in hospital a few years ago and I was messing around with a toy car. Thanks Mr. G!
I find it very difficult to move to because of the catheter, which thankfully they are taking out tomorrow. It is good for me to get out of bed though because:
A) It's good for me to move around
B) My back will stop hurting
C) They will have a chance to change my sheets
I reminded myself of all these good reasons as I was trying to get out of bed this evening to be weighed. It was much easier than yesterday.
The nurses have all been great and I knew some of them from before, which helps. Katie looked after me yesterday - she went to Fairthorn Manor with me a few years ago on a BKPA holiday. Lots of people have come to see me as well, especially Suzanne, from the clinics and so on. I also feel comfortable with the doctors as they are the same ones I see in clinic. The great thing is that they all always explain everything before they do it and they are very patient with all the questions I have.
Dad is feeling a lot better and the physio made him get up and walk a few steps today. He said this exhausted him. He has had all his lines out now. My bro is also a lot better and I got to speak to him on the phone earlier today.
Thanks everyone for visiting this blog and your support. More to come tomorrow!
Q
I had a nice surprise because Mrs. M brought Mrs. DeB with her and I wasn't expecting it. They brought me a special card - my friends from drama class had spelt out the words "Get well Q!" by laying on the grass in the shape of all the letters. Thank you Miss. B for changing your lesson for me! All of the teachers wrote on some pieces of paper saying get well soon - thank you Mr. H for those Maths questions! Mr. G, my Year 6 teacher, brought back an embarrassing memory of when he came to visit me in hospital a few years ago and I was messing around with a toy car. Thanks Mr. G!
I find it very difficult to move to because of the catheter, which thankfully they are taking out tomorrow. It is good for me to get out of bed though because:
A) It's good for me to move around
B) My back will stop hurting
C) They will have a chance to change my sheets
I reminded myself of all these good reasons as I was trying to get out of bed this evening to be weighed. It was much easier than yesterday.
The nurses have all been great and I knew some of them from before, which helps. Katie looked after me yesterday - she went to Fairthorn Manor with me a few years ago on a BKPA holiday. Lots of people have come to see me as well, especially Suzanne, from the clinics and so on. I also feel comfortable with the doctors as they are the same ones I see in clinic. The great thing is that they all always explain everything before they do it and they are very patient with all the questions I have.
Dad is feeling a lot better and the physio made him get up and walk a few steps today. He said this exhausted him. He has had all his lines out now. My bro is also a lot better and I got to speak to him on the phone earlier today.
Thanks everyone for visiting this blog and your support. More to come tomorrow!
Q
Friday 1.50pm
The pain is a bit better today. I am off the morphine and have had my neck line taken off. It hurt because there were three stitches holding it in that had to be removed. The nurses were very kind though.
I have slept quite a bit this morning. Mrs M from school is coming to see me this afternoon and also Julie.
I have to drink now - 250ml an hour at least. I have not eaten much but I know I have to start. I haven't got out of bed yet today but have to soon because I have to be weighed. I am not looking forward to that.
My Dad is doing well. He had an infection which hurt alot but the antibiotics seem to be working. He has been out of bed this morning and is cheerful. He says he feels nearly back to normal.
Q
I have slept quite a bit this morning. Mrs M from school is coming to see me this afternoon and also Julie.
I have to drink now - 250ml an hour at least. I have not eaten much but I know I have to start. I haven't got out of bed yet today but have to soon because I have to be weighed. I am not looking forward to that.
My Dad is doing well. He had an infection which hurt alot but the antibiotics seem to be working. He has been out of bed this morning and is cheerful. He says he feels nearly back to normal.
Q
Thursday 19 June 2008
Thursday - day 2 12.45pm
Today I feel really tired. I managed to sleep for the first time last night but woke up with an awful cough. Because I am so tired and don't feel well, nothing is cheering me up.
Th last couple of days when I couldn't sleep they didn't want me to do anything but when I get a tiny bit of sleep they keep wanting me to do things and be more active. With a big struggle, which took around 1 hour, I managed to get into a chair. This took my mum and Katie, my nurse, a lot of effort too. But now I am in the chair. I have a pillow over my tummy for extra support which helps.
The medicine is making me a bit shaky and I feel sick. Coughing also hurts alot and is not going away. I should be eating lunch but I don't feel up to it.
On a positive note, my results are good and the doctors are happy.
Th last couple of days when I couldn't sleep they didn't want me to do anything but when I get a tiny bit of sleep they keep wanting me to do things and be more active. With a big struggle, which took around 1 hour, I managed to get into a chair. This took my mum and Katie, my nurse, a lot of effort too. But now I am in the chair. I have a pillow over my tummy for extra support which helps.
The medicine is making me a bit shaky and I feel sick. Coughing also hurts alot and is not going away. I should be eating lunch but I don't feel up to it.
On a positive note, my results are good and the doctors are happy.
Wednesday 18 June 2008
Wednesday morning
This is Q's Mum here. He is not really up for blogging at the moment! I just wanted to do a short post to let you all know that both he and his Dad are doing well.
Q is trying to get some rest after some intensive nursing care over night. His creatinin is reducing steadily. The nurses are great and I must say very patient. As soon as they try to go off for a break something starts beeping! He still has a lot of monitors on and fluids, medicines going through etc but these are gradually reducing. He is now on 4 hourly bloods rather than 2 hourly. So basically things are going really well.
Dad has called us from the RFH and seems to be doing ok. Brother also alright and resting at home!
We will do another post soon when Q is feeling more up to it.
Q is trying to get some rest after some intensive nursing care over night. His creatinin is reducing steadily. The nurses are great and I must say very patient. As soon as they try to go off for a break something starts beeping! He still has a lot of monitors on and fluids, medicines going through etc but these are gradually reducing. He is now on 4 hourly bloods rather than 2 hourly. So basically things are going really well.
Dad has called us from the RFH and seems to be doing ok. Brother also alright and resting at home!
We will do another post soon when Q is feeling more up to it.
Tuesday 17 June 2008
I'm back
Hello everyone. This is the blog note my uncle Jude wrote out at 7.35pm shortly after I got back to my room from theatre. Don't worry Mum has checked it with me!
Just woke up, feeling a lot of pain. Mum, G'ma, my Aunt and my fab uncle Jude were waiting for me. I am very happy as I just found out I have no canula's on my left hand and that hand is completely free. I have lots of canulas in my right hand. I think canulas are one of the worst things about being in hospital, especially when they need flushing. Something new should be invented!
I have a button to press when I need more morphine. Unfortunately they have fixed it that the maximum I can press it is once every 10 minutes. This stops me from overdosing. That stops my fun!
Feeling very sleepy with 7/10 pain. The nurses said the first question I asked was about how my Dad was. Fine apparently and wathching the France match. My Mum just told me they cut my hair whilst I was in theater! Ha Ha!
My bro also decided to join in the fun today - he was sent to A&E at the RFH by the GP because of his symptons - very bad cough and other stuff - he was seen by the tropical disease doctors. They were very good and he has had all possible samples taken. Any way he has been sent home with antibiotics.
My Dad is doing well. He is quite sleepy too. My mum took a photo of him for me from his hospital bed.
Tomorrow I will be able to tell more.
Just woke up, feeling a lot of pain. Mum, G'ma, my Aunt and my fab uncle Jude were waiting for me. I am very happy as I just found out I have no canula's on my left hand and that hand is completely free. I have lots of canulas in my right hand. I think canulas are one of the worst things about being in hospital, especially when they need flushing. Something new should be invented!
I have a button to press when I need more morphine. Unfortunately they have fixed it that the maximum I can press it is once every 10 minutes. This stops me from overdosing. That stops my fun!
Feeling very sleepy with 7/10 pain. The nurses said the first question I asked was about how my Dad was. Fine apparently and wathching the France match. My Mum just told me they cut my hair whilst I was in theater! Ha Ha!
My bro also decided to join in the fun today - he was sent to A&E at the RFH by the GP because of his symptons - very bad cough and other stuff - he was seen by the tropical disease doctors. They were very good and he has had all possible samples taken. Any way he has been sent home with antibiotics.
My Dad is doing well. He is quite sleepy too. My mum took a photo of him for me from his hospital bed.
Tomorrow I will be able to tell more.
'The Day'
OH MY GOODNESS this is the big day
Dad is now having his op and I will be going in around 1pm
HELP!!!!
Thank You everyone for your comments and prayers and support!
This morning they got my bed ready for after the transplant. This involves an extra mattress for extra comfort and a special weighing sheet. It was really fun when they weighed me, you get lifted up when you are in bed. This bed is going down with me to theatre and I will wake up on it.
Now I am having my blood pressure taken, they need to do both arms and my legs! That is weird and ticklish on my legs. I needed a laugh!
Last night I stayed up chatting to the nurses for a couple of hours - I didn't go to bed until 2am, then I played on my PSP to help me get to sleep. As I was just getting to sleep the two babies opposite screamed and cried. When I did finally sleep, next thing I was being woken up to have some breakfast - I had 3 slices of toast. I was allowed to eat until 7.30 and I am allowed to drink water until 10.30 which is in half an hour.
Dad seems ok, he sent my Mum a couple of texts. He said he looks lovely in the stockings!
Wish me luck.
Q
Dad is now having his op and I will be going in around 1pm
HELP!!!!
Thank You everyone for your comments and prayers and support!
This morning they got my bed ready for after the transplant. This involves an extra mattress for extra comfort and a special weighing sheet. It was really fun when they weighed me, you get lifted up when you are in bed. This bed is going down with me to theatre and I will wake up on it.
Now I am having my blood pressure taken, they need to do both arms and my legs! That is weird and ticklish on my legs. I needed a laugh!
Last night I stayed up chatting to the nurses for a couple of hours - I didn't go to bed until 2am, then I played on my PSP to help me get to sleep. As I was just getting to sleep the two babies opposite screamed and cried. When I did finally sleep, next thing I was being woken up to have some breakfast - I had 3 slices of toast. I was allowed to eat until 7.30 and I am allowed to drink water until 10.30 which is in half an hour.
Dad seems ok, he sent my Mum a couple of texts. He said he looks lovely in the stockings!
Wish me luck.
Q
Sunday 15 June 2008
The night before we go in
Thank you all for your comments. This is my last evening at home before going into hospital tomorrow.
I'm looking forward to all this being over. There are three things I am looking forward to after the operation:
a) not having to take a horrible tablet called calcium carbonate
b) feeling better
c) growing
I feel really gutted that my bro can't come and visit me in hospital cos he just got back from Mozambique and he may be carrying something which I don't want to catch. My brother was there for most of the important appointments for my Dad and me about what is going to happen, how its going to happen and when. He wanted to be part of it all. Now its all going to be on the phone!
Keep leaving me comments. The next post will be from the hospital and I'll also include thoughts from my Dad at the RFH.
Q
xx
I'm looking forward to all this being over. There are three things I am looking forward to after the operation:
a) not having to take a horrible tablet called calcium carbonate
b) feeling better
c) growing
I feel really gutted that my bro can't come and visit me in hospital cos he just got back from Mozambique and he may be carrying something which I don't want to catch. My brother was there for most of the important appointments for my Dad and me about what is going to happen, how its going to happen and when. He wanted to be part of it all. Now its all going to be on the phone!
Keep leaving me comments. The next post will be from the hospital and I'll also include thoughts from my Dad at the RFH.
Q
xx
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