In hospital again but only one day!

I had my final procedure yesterday - Tuesday - to have the stent removed. I was keen to go and have it done because it was giving me some trouble but I also knew it would hurt after, so I had mixed feelings. It was also another general anaethestic which was not great. I did get to have a good chat with the nurses though.

Right now, although it is a mini heatwave, I am lying on the sofa with my duvet which I always do when I am 'ill'.

Can you believe it is now 5 weeks since the transplant? My Dad has gone back to work now and seems to be ok.

I went and helped out with Grandma's school play last week, Guys and Dolls, which was very good.

I am managing my medicine well - there is one immune suppressant which I have to take twice a day but the timing is quite hard - it has to be one hour before food and two hours after food. Since I am hungry all the time this is not easy! I have put on several kilos and Mum thinks I am addicted to tuna sandwiches! That medicine also makes me quite shaky which is weird.

Last week was cool - I had a sleep over with my friend. It was great to get away from home for a night. I also played on the Wii for the first time in my life - it was really fun and it gives your arms a workout. I also watched a movie with my brother on Saturday.

I am down to twice weekly visits to the hospital for check ups.

So things are slowly getting back to normal......

Friday 1.50pm

The pain is a bit better today. I am off the morphine and have had my neck line taken off. It hurt because there were three stitches holding it in that had to be removed. The nurses were very kind though.

I have slept quite a bit this morning. Mrs M from school is coming to see me this afternoon and also Julie.

I have to drink now - 250ml an hour at least. I have not eaten much but I know I have to start. I haven't got out of bed yet today but have to soon because I have to be weighed. I am not looking forward to that.

My Dad is doing well. He had an infection which hurt alot but the antibiotics seem to be working. He has been out of bed this morning and is cheerful. He says he feels nearly back to normal.

Q

Week before the big day

This is my last week before the op. What have I got to look forward to? Well - this week I have to do exams - french, math and RE! What fun! The french is part of my GCSE coursework - yea! I also have to do a speech for english which I am surprisingly looking forward to. It is about the hospital and what makes it so great. In fact, I will try to upload my slides to this site so you can join in. Yeaaahhhahh. That also counts towards my english GCSE. I'm trying to keep up with everything but its kinda hard.

School have been great, they are treating me with lots of care and kindness. Big thanks to Mrs M, Mrs G, Mrs B and Mr W and of course, the infirmary. Everyone really. Also good luck to Sister H who is retiring - what will you do without us to keep you busy?

Tuesday is my last hospital appointment before the big day - this is when they do a last cross match between me and my Dad. They do this by taking blood samples. This is done at GOSH. After this appointment my Dad is going to the RFH (where he is having his op) to find out more about the ward and to do a pre-admission. This means he gets to go in later on the 16th but I have to arrive at midday. I'll tell you more about that in a later blog.