Wednesday, 23 July 2008

In hospital again but only one day!

I had my final procedure yesterday - Tuesday - to have the stent removed. I was keen to go and have it done because it was giving me some trouble but I also knew it would hurt after, so I had mixed feelings. It was also another general anaethestic which was not great. I did get to have a good chat with the nurses though.

Right now, although it is a mini heatwave, I am lying on the sofa with my duvet which I always do when I am 'ill'.

Can you believe it is now 5 weeks since the transplant? My Dad has gone back to work now and seems to be ok.

I went and helped out with Grandma's school play last week, Guys and Dolls, which was very good.

I am managing my medicine well - there is one immune suppressant which I have to take twice a day but the timing is quite hard - it has to be one hour before food and two hours after food. Since I am hungry all the time this is not easy! I have put on several kilos and Mum thinks I am addicted to tuna sandwiches! That medicine also makes me quite shaky which is weird.

Last week was cool - I had a sleep over with my friend. It was great to get away from home for a night. I also played on the Wii for the first time in my life - it was really fun and it gives your arms a workout. I also watched a movie with my brother on Saturday.

I am down to twice weekly visits to the hospital for check ups.

So things are slowly getting back to normal......

Tuesday, 8 July 2008

National Transplant Week

Thankfully my Biopsy results were fine and my creatinin has gone back down to 82. I hope that when they take the stent out they won't need to do a another biopsy but they probably still want to, so they can make sure. I am doing fine and starting to go less often to the hospital.

It is National Transplant week this week. I have a Donor card, HAVE YOU!!!!!!!!!!
If not there is a link on my blog. Just click on the Donor card symbol. One person can save 8 lives!

My birthday was excellent. I got lots of money and gifts, especially from school who sent me a box full of Washing stuff. HA HA!!

Odd as it may seem, it was nice to see some of my teachers. I also want to thank my school for raising over £200 at the school Midsummer festival for GOSH, through a sweet sale. THANKS

Tuesday, 1 July 2008

A blip

I was in a really bad mood yesterday. I found out I had to have a biopsy as my results suddenly got worse. My creatinin jumped to 97. The biopsy was booked for this morning so Mum and I are back here on Victoria Ward. I was in a horrible mood to start with but now it is all over and I do feel fine now. The biopsy was ok; I had entemol gas so I was too high to notice much! The nurse also told me everything as it was going on so that was fine. The lights seemed liked smiley faces spinning round me but all in one place. Very weird!

Since then I have been eating constantly. I seem to be having a shaky day today which is a side effect of one of my immunosuppressants but it seems worse today even though the level has been tested and is ok.

Some good news - I don't have to go to the hospital tomorrow! It is my birthday and I have a day off!

Saturday, 28 June 2008

Saturday - new weekly update

This is a picture of some of the 'get well soon' cards my Dad and I have received. Everyone has been so kind thinking of us.

I have decided to update my blog every Saturday now that I am home from the hospital. If anything interesting happens, I will do a post in between. I hope you will keep checking on my blog each week.

Dad and I are recovering at home. My Dad has got a cold already! Hopefully it will get better soon.


I have been going to the hospital every day to have my bloods checked and my blood pressure and weight too. Of course, the day we came out of hospital, I suddenly started to feel a lot of pain that night. In the morning, it was still hurting a lot and I thought I may have an infection. At the hospital I had to have an ultrasound scan as the Dr thought maybe it was the stent that was causing it. Everything looked fine on the scan and, as usually happens, as soon as I got to the hospital I started to feel better and the pain disappeared. They think it was the stent that moved a bit and caused some irritation. Typical! (The stent is a small tube that has been inserted into my ureter and bladder whilst my bladder gets used to the kidney, this will be removed about 6 weeks after the transplant - another anaethestic to look forward to!).

Apart from that everything is good so far. Being at home is great but boring in some ways. I am resting quite a bit. I have also started to eat loads! Trust me, I mean loads! The steroids I am taking are making me feel hungry all the time. I still have pain by my new kidney but it is gradually getting better, I can turn on my right side now rather than just lying on my back.



Introducing Tyler - the newest member of the family! This is my brother's cat. He is so cute, especially when he sleeps.

I'll have another post soon.

Q

Tuesday, 24 June 2008

Last Post from the hospital!

Guess what everyone!!!

I CAN GO HOME!

WooHoooooo!

Dr. B suggested this to me this morning when I told him that I had finally gone for a.... Well you can guess.

I was really happy when he said "we shall consider whether you can go home today or tomorow."

When the doctors came round they confirmed that TODAY!! was the day I was going home.

I repeat Woo Hoo!

But this is not the end. However, hopefully the worst is over but I still have to come every day for a few weeks for bloods and checkups.
When I get home I get to look forward to arguing with my dad about what to watch on TV. I am very lucky that I am going home as a boy came today who is now sleeping, he is SNOOORING very loudly!!!

Keep checking the blog and keep leaving comments. Thank you everyone for your support and comfort. I MIGHT miss SOME nurses HA HA, but I am sure they won't miss me.

Once again thank you for all your support and comfort and I will do a new post soon.

Monday, 23 June 2008


I thought you might like to see the clever picture of the card my drama class from school sent me. Sorry it is a bit blurry.

Quiz

Here is a quiz for all my readers:

Read each line aloud without making any mistakes: If you make a mistake you MUST start again without going any further.

this is this puzzle
this is is puzzle
this is how puzzle
this is to puzzle
this is keep puzzle
this is an puzzle
this is idiot puzzle
this is busy puzzle
this is for puzzle
this is forty puzzle
This is seconds! puzzle



Now read this:

Now go back and read the third word in each line from the top.

Well, I thought it was funny! But then again maybe I have been here too long!!! Check out Young Times using this link www.timesonline.co.uk/youngtimes for more puzzles!